Wednesday, October 16, 2013

News from my Surgeon...

I hope your day was good!

Today, I got to celebrate my FIRST Boss's Day!  I can't tell you how weird it is to hear someone say that but, I have the very best Team who remembered!  They got me a thoughtful card and want to take me to lunch... How thoughtful!!!

I heard back from my Surgeon today!  In my book, any news is good news!  I called my Doctor yesterday and again today and just as I stepped into my afternoon appointment with my clients, I could hear my phone vibrating in my drawer!

Surgeon O'Donnell left me a rather long message.  He was in surgeries all day, and took the time to call me in between.  While I was hoping to hear that he made a mistake in my diagnosis, I was still glad to hear from him. I honestly believe that he is the very best Surgeon for my case.

He told me that he waited to talk to me until he talked to Pathology directly.  He told me that Pathology said that it is a Myxoid Liposarcoma.  This tumor is malignant.  He told me that they still considered it a low grade tumor but, made sure to tell me that until they get the tumor completely out and test it, are they entirely sure.

Read about a Myxoid Liposarcoma HERE.

Due to Pathology thinking it's low grade, he will proceed with low grade treatment, until he hears otherwise.  He told me that he recommends surgery and radiation therapy.  He told me that he will start the radiation treatment during my surgery and put it directly into my wound where the tumor was and sew me right up!  I will then need follow-up radiation treatment.  He sent me a referral to the Radiation therapy specialist.  He told me that they will get in touch with me to schedule a consultation appointment.

He told me that he will have his assistant schedule the PET CT scan and then that same day, I will go back in for an appointment with him to discuss my surgery. The PET CT scan will help Dr. O'Donnell get closer to confirming what stage the tumor is. Also, by having a picture early on, Radiation will be able to see week by week how the radiation therapy is progressing by comparing it to the initial image.

Read about a PET CT Scan HERE.

Then, he went on to tell me that since Sarcoma is so rare that prior to my surgery he will bring my case forward to the Sarcoma Tumor Board on Friday, October 25th.  This Board is composed of the very best in the Sarcoma arena.  They will discuss my case and together decide on the very best way to operate (I had no idea that this Board existed).  Wasn't that a loooooong message?!  I was so thankful that he took the time to leave this message for me.

Learn more about the Sarcoma Tumor Board HERE.

He didn't say anything about my x-rays.  I'm assuming he was busy in between his surgeries and that they must not have raised any red flags or he would have addressed them...?  (I'll be calling them again tomorrow)

Please continue to pray for me and my health.  Pray that they PET CT scan gets scheduled soon.  Pray that I am referred to the very best Radiation therapy.  Pray that the Sarcoma Tumor Board is on their very best next Friday for the review of my case. Pray that my surgery gets scheduled at the very best time for the surgeon after all of his research is done.

Then Jesus said to his disciples: “Therefore I tell you, do not worry about your life, what you will eat; or about your body, what you will wear. For life is more than food, and the body more than clothes. Consider the ravens: They do not sow or reap, they have no storeroom or barn; yet God feeds them. And how much more valuable you are than birds! Who of you by worrying can add a single hour to your life? Since you cannot do this very little thing, why do you worry about the rest?  Luke 12:22-26




3 comments:

  1. I love you SO much, friend!!! We will continue our daily prayers for you!

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  2. Good for you for staying on top of your care and not being afraid to call/ask questions. It's your health after all! Another thing that helped us was making a "cancer care binder" in which we kept copies of all scans, medical forms, insurance claims, payments, etc. I can't tell you how often I have to refer to our binder to look at a past EOB or payment trail. Stay organized now and you'll thank yourself later! Also, don't be afraid to ask people for help. The most helpful things people did for us was dogsit our pooches, come over to walk them or bring us food. The food was such a lifesaver! Praying for you from NJ.

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  3. Sigh. Continuing blanket prayers for everyone include the STB - I never knew they existed either! Wow, wonder what THEIR meetings and happy hours are like lol. Interesting convo. So, Jesus forgot to mention worrying causes wrinkles. Geesh, men. But seriously don't worry and just take a deep breath. Love you!

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