Thursday, October 24, 2013

PET CT Scan - Results

Thursday came and went so quickly!!  Are you ready for FRIDAY !??

I was happy Dr. O'Donnell was able to fit us in the very next morning after my PET CT scan.  Typically, Thursdays are his new patient days.  He is very thorough so its easy for him to get behind in seeing new patients and doing a complete review.  My appointment today was scheduled for 8:30, and Dr. O'Donnell was able to fit me in at 11 am.  We didn't have anywhere else to be and we were very excited to hear about my results.

Once we were in the room, O'Donnell came right in.  He had already reviewed my PET CT scans with another Doctor and had already taken the time to type up my notes!!  He told us that my Myxoid Liposarcoma tumor is confirmed to be a really low grade!!!  He told us that it is rapidly changing but, that I caught this tumor early!!!  He told us that he might even be able to just treat my tumor with radiation during surgery and not have to do any follow-ups!!  We couldn't believe our ears and were SO excited!

He then went on to tell us that the PET CT reviled two areas on me that will need further testing.  The doctors noted one small mass in the lower lobe of my right lung, and a second small mass on my liver.  He told me not to worry at this stage.  I will need an MRI on my abdomen and my pelvic area.  Dr. O'Donnel asked me to have these exams done prior to my Radiation Consultation, which is scheduled for November 1st.  If these additional masses turn out to be something of concern, my radiation treatment will be different.  So its crucial to have the addition scans done prior to November 1st.

The first MRI appointment available with UCSF is on November 8th - which won't work.  One our drive back, I called around to different Imaging centers in the Sacramento area.  We were able to find one that has an opening early next week!!  I called Regina at UCSF and left her a message asking her to send the request over.

This is a fun part of our day... as we were about to leave the patient room, Dr. O'Donnell told us that one day, as a Dr. he will write a really good book on how to be a good patient.  He told me that he would like to reference us in the book!  He said that I am always so nice to the nurses and his assistant.  He told me that they always tell him about patients and that when you are nice, it goes over well with everyone!  Isn't Dr. O'Donnell the nicest?

Just a reminder... The Sarcoma Tumor Board will be meeting tomorrow about my very rare tumor in my knee!  Please pray for the Wisdom of these Surgeons, Doctors, and Nurses who will be reviewing my case.  Pray that they get excellent sleep tonight and are alert and ready to give excellent input tomorrow.

Thanks for reading!

Love you all!

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