Appointments, Tumor Board Conference, & my Liver

I hope you are having a good day!

Appointments  

On Tuesday morning (last week), I heard from Dr. Mann's office, the receptionist told me that Dr. Mann had reviewed my images and accepted me into his practice.  She told me that O'Donnell asked that I be seen ASAP.  She was able to get me in to see Dr. Mann on Friday, December 9th at 3:00pm in San Francisco.  She told me that she also needed to book me an appointment with Oncologist, Dr. Jahan for chemo therapy (Ummmm..... I didn't know that I needed chemo??!).  I was able to get into meet with Dr. Jahan on Jan 11th.

Up to this point - I haven't heard anything about a diagnosis.  nothing.  It can kinda drive you CRAZY!!  lol

Tumor Board

I heard from Nurse Carol with Dr. O'Donnell's office on Wednesday (last week).  She called me just to see how I was doing with everything and the fact that I really didn't know "anything" at the moment.  I love that the nurses and doctors really make you feel like family at UCSF.  She explained to me that the tumor board would be meeting again to discuss my recent scans and treatment in the morning.  She told me that she would be out of the office and wouldn't be attending the Tumor Board.  In the past, Nurse Carol would sit-in on the board and take really good notes, then report back to me.  In this case she told me that Nurse Mira would get back to me before noon on the same day that the Tumor Board met and that if I didn't hear that it would be ok if I called in.

I love that Dr. O'Donnell presents my case to the Tumor Board to get options and options from the very BEST in Sarcoma.  From the beginning, O'Donnell has always wanted the best for me.  By referring my case to the Tumor Board - I have a TEAM off surgeons and radiologists looking out for me!  Im SO thankful!

What is a Tumor Board?

The Tumor Board is a 'meeting of the minds'.  Anyone who has anything to so with Sarcoma, and is available that day, meets to discuss the cases presented.  They meet weekly, on Thursday's, from 7am-8am. Typically they discuss only 1-2 cases per week.  Last week they reviews my case!!

To read more about the Tumor Board Conference, click HERE

Results... about my LIVER?

I called about 5 times before I heard back from Nurse, Mira around 11:45 am.  She told me that she had GOOD NEWS!!  That the Tumor board met and that the Lesion into my liver that had appeared to be growing was in fact only a Hemangioma (essentially a birthmark), and more importantly... NOT cancer!!  YAY!  I really wasn't concerned about my liver being an issue, I was more concerned about my lung.  After she told me this information, I asked her immediately about my lung.  Sh told me that her office doesn't specialize in the lung so that she wasn't able to comment and I would need to wait to talk to Dr. Mann at my Appointment on December 9th.

You can read more about a Hemangioma, HERE.

Thank you all for continuing to pray for me, my family, and my Doctors!
Thank you for reading!